We all have a few charities that we like to assist. Usually it's one we may have had to rely on, or a family member had to. Or a charity that we don't ever want to have to rely on.
I love the work that volunteers and charities do. Everyone wins with a charity. People who need it get help and people feel good for helping and our government taxes can be spent on other things, (like school chaplains and stuff).
Since my Dad died, the Leukaemia Foundation has been my charity of choice. They do good stuff and I strongly believe that blood cancer needs a great deal more funding, research and support. But if I had that much cash I think I would be a bit picky and want to tell them what they did with the dosh. I would want it to be spent on Amyloidosis. I would want it to be spent on medications that are available but that are not funded for Amyloid patients. There is nothing more hopeless than a life saving drug sitting in the fridge and the patient not having the cash to afford that drug, it happens every day in Australia.
My Dad's drug was $7000 a pop, he needed two a week. He was lucky and got on the right list, it was like a cruel joke when the doctor said "Yes! You have a double diagnosis, Myeloma patients get the drug, but Amyloid don't, but you have both diseases so you can get the medication!" We were strangely thrilled. It was hope, it was time, it was a possible time buyer.
Not everyone gets the double whammy. Other's are lucky to not be so sick. They need to wait til they are closer to dead to get the drug.
|This is the current fundraising event for all Leukaemia sufferers.|
So my million bucks would be for a medication fund for Amyloidosis. It would ensure that those few unlucky souls who get such a shitful disease will have access to hope. Access to a medicine that might buy them time, that will buy them the hope they need to live positive days. It might not even last all that long. That much money might be gone in a year a two, or the drug might be cheaper or it might be replaced with another more effective, more expensive option. Who knows what might happen because medical miracles are happening all the time.